About Caregivers and Caregiving

• Han & Haley 1999 caregiving.pdf — a review of 20 articles on stroke caregivers’ well-being and mental health
• LeDorze & Signori 2010.pdf — a qualitative study examining stroke spouses/caregivers’ needs
• Visser-Meily et al 2006.pdf— literature review on the role of stroke caregivers and the importance of a family-centered approach to rehabilitation
• ASHA Leader(July, 2015) — “Counseling the Caregiver” article includes information on changes in the caregiver’s perspective and needs with time post-onset, and related counseling suggestions.

Resources for Caregivers

• Caregiver Self-Assessment Questionnaire (American Medical Association) — 2-page questionnaire to help caregivers identify when they need support.
• Family Caregiver Handbook — a pdf, 60-page document with information about caregiving activities (in-home care and safety), resources, planning, as well as the emotional challenges of caregiving, published by Wash State DSHS. Especially note the “Caregiver Bill of Rights” on page 2, which can serve as a 1-page handout for caregivers and fuel support group discussion (see also National Aphasia Association — Caregiver Bill of Rights .