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COVID-19 Resources for PWA, Caregivers, and Clinicians
- UD Aphasia & Rehab Outcome Lab’s Online Resources for PWA PDF
- A helpful, aphasia-friendly infographic explaining all major COVID facts from Tactus Therapy
- A curated list of COVID resources for people who need communication supports
- The Centre for Research Excellence in Aphasia Recovery & Rehabilitation will be sharing all aphasia-COVID resources starting March 23
- The Aphasia Institute has a free PDF using their ParticiPics to explain COVID-19 in an aphasia-friendly format
- Lingraphica news during COVID-19
- A repository of COVID resources for the healthcare community
- Zoom Instructions for People with Aphasia from Aptus Speech Therapy
- Nationwide Telepractice Service Finder from Aphasia.org
- Tactus Speech Therapy App Finder for Adults Recovering from a Stroke
Counselor/Psychotherapist Locators
Resources for Communication Disorders
- Academy of Neurologic Communication Disorders and Sciences (ANCDS)
- American Speech-Language-Hearing Association (ASHA)
- speechBITE – Speech Pathology Database for Best Interventions and Treatment Efficacy
Aphasia
- Aphasia Access
- Aphasia Alliance
- Aphasia Community
- Aphasia Hope Foundation
- Aphasia Institute
- Australian Aphasia Rehabilitation Pathway
- National Aphasia Association (NAA)
Intensive Aphasia Programs
- Yones Speech Therapy, St. Petersburg, FL
- Voices of Hope for Aphasia, St. Petersburg, FL
- Aphasia House, University of Central Florida, Orlando, FL
- Shirley Ryan AbilityLab, Chicago, IL
- Northwestern University Intensive Aphasia Program, Evanston, IL
- University of Michigan Aphasia Program, Ann Arbor, MI
- University of Montana Intensive Big Sky Aphasia Program (BSAP) – Comprehensive Aphasia Program, Missoula, MT
- Loyola University – Intensive Treatment for Aphasia Program (ITAP), Baltimore, MD
Residential Aphasia Programs
- Program for Intensive Residential Aphasia Treatment (PIRATE), Pittsburgh, PA Veterans Administration
- The Aphasia Center, St. Petersburg, FL
- Stronger After Stroke: Your Roadmap to Recovery by Peter G. Levine
- HOPE Guide to Recovering from Stroke
- Recovery from stroke is a lifelong For many people, recovery begins with formal rehabilitation. It is important for you and your family to know that, no matter where you are in your recovery journey, there is always hope. Learn as much as you can about stroke and recovery, and the resources that are available. National Stroke Association has designed this publication to provide you with valuable information and help you on your road to recovery.
- Fact Sheets
- Includes the following fact sheets and more: Stroke 101, assistive technologies, goal setting, blood medications, managing fatigue, healthy eating, driving, employment, bowel/bladder function, coping with emotions, dealing with pain
- Life After Stroke
- This site provides easy-to-understand information and guides about stroke and the journey after stroke. Download each section or the whole book. Sections include: First Questions after stroke, Effects of Stroke, The Rehabilitation Experience, and Facts and Further Reference.
- American Stroke Association
- Learn more about stroke, healthy habits to control stroke risk factors, and stroke rehab, recovery, and support options. Read other people’s stories and find out what’s new in stroke research. Find out about stroke support groups in your area and talk with other stroke survivors and caregivers
- Sign up to get Stroke Connection, a free magazine for survivors and caregivers.
- The National Center on Physical Activity and Disability
- Visit this website to access personalized tools and resources to help you meet your goals for physical activity—regardless of your disability.
- World Stroke Organization
- International organization focused on stroke prevention, treatment, and long-term care across the globe.
- Rebuilding Together
- A national nonprofit group whose network of 200+ affiliates furnishes free home modifications and repairs for low-income homeowners who are disabled and for seniors – many of whom are stroke survivors
Resources for Crisis Intervention
- Contact Lifeline — For crisis resources, go to website or call 1-800-262-9800
- Suicidality information — this document includes information on what to do if you suspect suicide ideation or intention
- ULifeline— for information or help regarding suicide, mental health, substance abuse, sexual abuse, or other crises specifically in college students
- National Hotlines:
- Suicide: 1-800-273-TALK
- Suicide: 1-800-SUICIDE
- Rape, Abuse, Incest: 1-800-656-HOPE
- Family Caregiver Alliance
- Phone: (800) 445-8106
- FCA is a public voice for caregivers (primarily geared towards eldercare) and has developed a wide array of services and publications based on caregiver needs. FCA offers programs at local, state, and national levels. They provide information on common caregiving issues and strategies, how to deal with health and legal issues, caregiver FAQs, and caregiver information in other languages.
- Additionally, their website offers online caregiver support groups, available through an email/list serve format.
- National Alliance for Caregiving
- Dedicated to providing support to family caregivers and the professionals who help them and to increasing public awareness of issues facing family caregivers.
- They provide brochures on topics such as care for the caregiver, resources for caregivers, helping family caregivers through the process, and information on aging parents and palliative care.
- Caregiver Action Network
- Phone: (202) 454-3970
- (formerly the National Family Caregivers’ Association) Maintains a peer-support network that puts caregivers in touch with others in similar situations.
- Educates, supports, empowers, and speaks up for the more than 50 million Americans who care for loved ones with a chronic illness or disability or the frailties of old age.
- Offers a newsletter and other printed materials with information and resources: the Caregiver Toolbox.
- The Well Spouse Foundation
- Phone: (732) 577-8899
- Email: info@wellspouse.org
- Provides support to spouses/partners of the chronically ill or disabled through support groups, caregiver networks, and a bimonthly newsletter.
- Offers monthly, peer-run, in-person or telephone support groups. Here, members can share thoughts and feelings openly with others who are facing similar circumstances in a supportive, non-judgmental environment.
- CareGiving.com
- Phone: (773) 343-6341
- Offers information about your needs as a caregiver, a caregiver blog, and online support groups. Focuses on caring for aging relatives.
- Net of Care
- Email: findhelp@netofcare.org.
- Provides information for caregivers about what a caregiver is, how to cope as a caregiver, taking stock of your situation, and asking for help. Offers resources for internet chat rooms with other caregivers and national caregivers organizations.
- AARP Family Caregiving
- For support: (877) 333-5885
- Spanish: 1-888-971-2013
- A one-stop meeting place for caregivers of a wide variety of health conditions. By entering your email address, you can sign up for a monthly newsletter, which includes highlights from all categories.
- Offers very useful coping tips and advice on issues such as the basics of caregiving, balancing caregiving with other duties, financial and legal matters, stress relief, food, fitness, wellness, comfort, and relaxation. The “Local Resources and Solutions” tab offers support and other resources located in your area.
- Share the Care
- Sharethecaregiving, Inc. is a not-for-profit organization dedicated to educating the public about group caregiving as a proven option for meeting the needs of the seriously ill and their caregivers.
- Sharethecaregiving uses a widely adopted group caregiving model known as SHARE THE CARE. The SHARE THE CARE model provides a road map on how to form a caregiver team (comprising friends, relatives, neighbors, coworkers, and acquaintances) to provide individuals and families with the help they need to meet the daily challenges of caregiving.
- Rosalynn Carter Institute for Caregiving
- Provides information on caregiving, including reading lists, video products, and other caregiver resources.
- Culture, Language, and Health Literacy – “…health care providers need to recognize and address the unique culture, language and health literacy of diverse consumers and communities”
- EthnoMed – “integrating cultural information into clinical practice”
- Center for International Rehabilitation Research Information & Exchange (CIRRIE): The Rehabilitation Provider’s Guide to Cultures of the Foreign-Born
Resources for Neurocognitive Disorders
- Brain Injury Association of America
- “The Brain Injury Association of America’s nationwide network of chartered state affiliates provide direct support and advocacy for individuals living with brain injury, their friends and family, professionals and the general public.” Click here to access the Brain Injury Association of your specific state.
- Council on Brain Injury
- Alzheimer’s Association
- Frontotemporal Degeneration department at Penn
- Jamie Reilly’s Concepts & Cognition Lab at Temple
Resources for the DE Community
- Delaware 2-1-1 — Statewide, county-based resource and referral service for health, human services, legal, financial crises. Similar 211 services exist in most other states.
- Suicidality information — this document includes information on what to do if you suspect suicide ideation or intention. For a psychiatric or substance abuse crisis in Delaware, contact Mobile Crisis Services (MCIS):
- Northern Delaware Hotline, call: 800-652-2929
- Southern Delaware Hotline, call: 800-345-6785
- DE Department of Services for Children, Youth and their Families– to report Child Abuse and Neglect or Mental Health/Substance Use Emergencies
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- UD Center for Counseling & Student Development: 302-831-2141
- UD Helpline 24/7/365: 302-831-1001
- Crisis Text Line: Text “UDTEXT”, or “STEVE” for students of color, to 741741
- Student Health Services: 302-831-2226
- UD Police and/or Ambulance: 911
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UD Advocacy and Support
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- UD Division of Student Life
- UD’s LGBTQ+ Advocacy, Support, and Resources page – Find resources, FAQs, program information, and links to request or register for LGBTQ+ 101, Trans 101, and Ally Training
- Center for Black Culture – “an informational resource center for a range of University and community constituents; assists students with transitioning to University life; provides a supportive environment that encourages identity and leadership development as well as belonging; advocates for the needs and interests of Black and other underrepresented students; and develops and implements a full range of diversity programs and services”
- UD Diversity and Inclusivity
- UD Office of Equity and Inclusion — “…providing leadership and support in creating an equitable, diverse and inclusive working and learning environment for all in our community. OEI is responsible for managing complaints of harassment and discrimination, affirmative action compliance, protection of minors on campus, and on-going education in all of these areas.”
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Counseling Resources for UD
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- UD Center for Counseling and Student Development
- call for an appointment: (302) 831-2141
- access the Helpline at (302) 831-1001 anytime
- if you’d prefer not to talk over the phone, you can connect with a mental health professional by texting UDTEXT to the phone number 741741
- Emergency information for counseling center and other local facilities
- A list of mental health and self-care resources from the UD Counseling Center
- The UD Center for Counseling & Student Development offers a variety of counseling and psychiatry services:
- Educational Concerns
- Group Counseling
- Individual Counseling
- Personal Concerns
- Psychiatry – The Counseling Center can assess “a variety of conditions including Mood Disorders (e.g. Depression, Bipolar Disorder), Anxiety Disorders (e.g. Panic Attacks, Generalized Anxiety, OCD), Eating Disorders and Attention Disorders (e.g. ADHD)”
- ULifeline: for information or help regarding suicide, mental health, substance abuse, sexual abuse, or other crises specifically in college students
- UD Center for Counseling and Student Development
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Safety and Emergencies
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- UD Police Department
- Information on Services available
- Contact information for all UD Police Services or other services, including:
- 911 – All emergencies – on or off campus
- (302) 831-2222 or police@udel.edu – Non-emergency police and general information
- (302) 831-2224 – Escorts, bank deliveries, etc.
- (302) 831-1204 – Department administration
- (302) 831-4138 – Security services and special events
- (302) 831-7433 or ciu-udpd@udeel.edu – Criminal Investigations
- (302) 831-8538 or cru-udpd@udel.edu – Community Resource Unit
- (302) 831-2478 – Billing inquiries
- Crisis Management Guide – types of emergencies and what to do
- UD Police Department