The following resources are mainstream representations of some of the narratives encountered in clinical practice. They can be useful as references for patients, friends/family of patients, or as clinicians to see the rehab process through a pop-culture lens.
Blogs (Patient Perspectives)
- Brain Injury Blogs
- Blogs for a Cure — includes head and neck cancer survivor bloggers
- Carly’s Voice — a teenager with autism
Blogs (Caregiver Perspectives)
- Defective Yeti: Loving the Unknown— blog post by a parent with a school-age child with ASD
- The Dopamine Diaries — written by a daughter about caring for her mother with dementia
Books
- Now I Understand Aphasia: Tell Me Town Books by Cindy Chambers; Illustrated by Jim Huber
- Brain on Fire: My Month of Madness by Susannah Cahalan
- Dancing with Rose: Finding Life in the Land of Alzheimer’s: One Daughter’s Hopeful Story by Lauren Kessler
- My Stroke of Insight: A Brain Scientist’s Personal Journey by Jill Bolte Taylor
- The Spirit Catches You and You Fall Down: A Hmong Child, her American Doctors, and the Collision of Two Cultures by Anne Fadiman
- Don’t Leave Me This Way: Or When I Get Back on My Feet You’ll Be Sorry by Julia Fox Garrison
- Brain, Heal Thyself: A Caregiver’s New Approach to Recovery from Stroke, Aneurysm, And Traumatic Brain Injuries by Madonna Siles, Lawrence J. Beuret M.D.
- Lessons Learned: Stroke Recovery from a Caregiver’s Prospective by Bernice Kleiman
- After a Stroke: A Support Book for Patients, Caregivers, Families and Friends (The Family Health Series) by Geoffrey Donnan, M.D., Carol Burton
- The Comfort of Home for Stroke: A Guide for Caregivers by Maria M. Meyer, Paula Derr
- Passages in Caregiving: Turning Chaos into Confidence by Gail Sheehy
- Caregiving: The Spiritual Journey of Love, Loss, an d Renewal by Beth Witrogen McLeod
- To Survive Caregiving: A Daughter’s Experience, A Doctor’s Advice on Finding Hope, Help and Health by Cheryl E. Woodson
Movies
- Brain on Fire (movie)
- My Beautiful Broken Brain (documentary)
- The Canyon Behind Them: A Stroke Caregiver Documentary by Brett Myles