•  American Stroke Association
  • Learn more about stroke, healthy habits to control stroke risk factors, and stroke rehab, recovery, and support options. Read other people’s stories and find out what’s new in stroke research. Find out about stroke support groups in your area and talk with other stroke survivors and caregivers
  • Sign up to get Stroke Connection, a free magazine for survivors and caregivers.
• The National Center on Physical Activity and Disability
  • Visit this website to access personalized tools and resources to help you meet your goals for physical activity—regardless of your disability.
• World Stroke Organization
  • International organization focused on stroke prevention, treatment, and long-term care across the globe.
• Rebuilding Together
  • A national nonprofit group whose network of 200+ affiliates furnishes free home modifications and repairs for low-income homeowners who are disabled and for seniors – many of whom are stroke survivors
• Eastern Seals
  • A disability services and support organization that offers programs to help purchase assistive technology. The Finance Your Independence program is open to Delaware residents of all
    ages with disabilities of all types; seniors with age-related functional limitations; and family members caring for someone with a disability.
• HOPE Guide to Recovering from Stroke
  • Recovery from stroke is a lifelong For many people, recovery begins with formal rehabilitation. It is important for you and your family to know that, no matter where you are in your recovery journey, there is always hope. Learn as much as you can about stroke and recovery, and the resources that are available. National Stroke Association has designed this publication to provide you with valuable information and help you on your road to recovery.
• Fact Sheets
  • Includes the following fact sheets and more: Stroke 101, assistive technologies, goal setting, blood medications, managing fatigue, healthy eating, driving, employment, bowel/bladder function, coping with emotions, dealing with pain
• Life After Stroke
  • This site provides easy-to-understand information and guides about stroke and the journey after stroke. Download each section or the whole book. Sections include: First Questions after stroke, Effects of Stroke, The Rehabilitation Experience, and Facts and Further Reference.

• Stroke Smart Magazine
  • “Stroke Smart” was a magazine published by the National Stroke Association (now part of the American Stroke Association). Archived articles are available addressing topics for both stroke survivors and stroke
• Stroke Connection Magazine
  • “Stroke Connection” is a FREE quarterly magazine published by the American Heart Association and the American Stroke Association. Contains articles for both stroke survivors and stroke caregivers.
• Today’s Caregiver Magazine
  • This bi-monthly magazine addressing the needs and concerns of caregivers, and is dedicated to those caring for loved ones with Alzheimer’s, cancer, AIDS, and other threatening diseases.
  • Subscribe online.

• Caregiver Self-Assessment Questionnaire 
  • 2-page questionnaire from the American Medical Association to help caregivers identify when they need support
• Delaware 2-1-1
  • Statewide, county-based resource and referral service for health, human services, legal, or financial crises. Similar 211 services exist in most states.
• Family Caregiver Alliance
  • Phone: (800) 445-8106
  • FCA is a public voice for caregivers (primarily geared towards eldercare) and has developed a wide array of services and publications based on caregiver needs. FCA offers programs at local, state, and national levels. They provide information on common caregiving issues and strategies, how to deal with health and legal issues, caregiver FAQs, and caregiver information in other languages.
  • Additionally, their website offers online caregiver support groups, available through an email/list serve format.
• Eastern Seals
  • A disability services and support organization that offers programs to support caregivers navigating assistive technology and caregiver respite services.
• National Alliance for Caregiving
  • Dedicated to providing support to family caregivers and the professionals who help them and to increasing public awareness of issues facing family caregivers.
  • They provide brochures on topics such as care for the caregiver, resources for caregivers, helping family caregivers through the process, and information on aging parents and palliative care.
• Caregiver Action Network
  • Phone: (202) 454-3970
  • (formerly the National Family Caregivers’ Association) Maintains a peer-support network that puts caregivers in touch with others in similar situations.
  • Educates, supports, empowers, and speaks up for the more than 50 million Americans who care for loved ones with a chronic illness or disability or the frailties of old age.
  • Offers a newsletter and other printed materials with information and resources: the Caregiver Toolbox.
• The Well Spouse Foundation
  • Phone: (732) 577-8899
  • Email: info@wellspouse.org
  • Provides support to spouses/partners of the chronically ill or disabled through support groups, caregiver networks, and a bimonthly newsletter.
  • Offers monthly, peer-run, in-person or telephone support groups. Here, members can share thoughts and feelings openly with others who are facing similar circumstances in a supportive, non-judgmental environment.
• CareGiving.com
  • Phone: (773) 343-6341
  • Offers information about your needs as a caregiver, a caregiver blog, and online support groups.  Focuses on caring for aging relatives.
• Net of Care
  • Email:  findhelp@netofcare.org.
  • Provides information for caregivers about what a caregiver is, how to cope as a caregiver, taking stock of your situation, and asking for help.  Offers resources for internet chat rooms with other caregivers and national caregivers organizations. 
• AARP Family Caregiving
  • For support: (877) 333-5885
  • Spanish: 1-888-971-2013
  • A one-stop meeting place for caregivers of a wide variety of health conditions. By entering your email address, you can sign up for a monthly newsletter, which includes highlights from all categories.
  • Offers very useful coping tips and advice on issues such as the basics of caregiving, balancing caregiving with other duties, financial and legal matters, stress relief, food, fitness, wellness, comfort, and relaxation. The “Local Resources and Solutions” tab offers support and other resources located in your area.
• Share the Care
  • Sharethecaregiving, Inc. is a not-for-profit organization dedicated to educating the public about group caregiving as a proven option for meeting the needs of the seriously ill and their caregivers.
  • Sharethecaregiving uses a widely adopted group caregiving model known as SHARE THE CARE. The SHARE THE CARE model provides a road map on how to form a caregiver team (comprising friends, relatives, neighbors, coworkers, and acquaintances) to provide individuals and families with the help they need to meet the daily challenges of caregiving.
• Rosalynn Carter Institute for Caregiving
  • Provides information on caregiving, including reading lists, video products, and other caregiver resources.
• Lotsa Helping Hands
  • Secure website that provides friends, family, colleagues, and neighbors the opportunity to offer help to loved ones at crucial times. An easy-to-use private group Care Calendar helps to coordinate tasks such as meals delivery, rides, and other tasks necessary to keep life running smoothly. Provides a space for status updates, message boards, and photo galleries.
• Caring Bridge
  • Secure, personalized website to help keep loved ones current and connected during difficult times. Each website includes a patient care journal to update family and friends, a guestbook for messages of love, a photo gallery, and free online support for using the service.

• Emotional Renewal for Caregivers: Looking After Yourself While Helping a Loved One by Lynn Joseph, PhD
  • This superb, 7-track, guided imagery CD targets caregiver stress in a wonderfully knowledgeable, compassionate, and comprehensive way. Segments include an Intro with Advice, and imagery segments for: Boosting Self-Love; Planning a Smooth Day; Healing Stressful Feelings; Connecting with Your Future Self; Sleeping Soundly; and much more. Playing time: 72 min.
  • Available from healthjourneys or Amazon.
• A Guided Meditation to Help with Caregiver Stress by Belleruth Naparstek
  • Imagery to remind the caregiver – whether family member or professional provider – of their own strength, goodness, tenacity, and resourcefulness.  Also designed to provide relaxation and balance; sustain motivation; reduce isolation; acknowledge the difficulties without sugar-coating them; help release any accrued resentment; and restore hope for the future. Includes guided imagery and affirmations. Playing time: 45 min.
  • Available from healthjourneys or Amazon

Family Caregiver Handbook — a 60-page pdf document with information about caregiving activities (in-home care and safety), resources, planning, as well as the emotional challenges of caregiving, published by Wash State DSHS. Especially note the “Caregiver Bill of Rights” on page 2, which can serve as a 1-page handout for caregivers and fuel support group discussion (see also National Aphasia Association — Caregiver Bill of Rights).

Stronger After Stroke: Your Roadmap to Recovery by Peter G. Levine

Don’t Leave Me This Way: Or When I Get Back on My Feet You’ll Be Sorry by Julia Fox Garrison

Brain, Heal Thyself: A Caregiver’s New Approach to Recovery from Stroke, Aneurysm,  And Traumatic Brain Injuries by Madonna Siles, Lawrence  J. Beuret

Lessons Learned: Stroke Recovery from a Caregiver’s Prospective by Berenice  Kleiman

After a Stroke: A Support Book for Patients, Caregivers, Families and Friends  (The Family Health Series) by Geoffrey Md Donnan, Carol Burton

The Comfort of Home for Stroke: A Guide for Caregivers by Maria M. Meyer, Paula Derr

Passages in Caregiving: Turning Chaos into Confidence by Gail Sheehy

Caregiving: The Spiritual Journey of Love, Loss, an d Renewal by Beth Witrogen McLeod

To Survive Caregiving: A Daughter’s Experience,  A Doctor’s Advice on Finding Hope, Help  and Health by Cheryl E. Woodson

Independent Living: Functioning With the Use of One Hand in a Two-Handed World by Patricia S. Burnett

Do It One-Handed: A Manual of Daily Living Skills for Stroke Rehabilitation by Susan Cohn

Moss Rehab Aphasia Activity Center

• Talking Book Club
• Reta’s Games Group
• Persons with Aphasia Training Dogs program

Yoga Club at the Aphasia and Related Conditions (ARC) Research Lab

One-Handed Activity Tutorials:

• Crochet
  • Also, another tutorial here
• Knitting
• Gardening
• Baking
• Pottery

• Deep breathing to lower stress
  

  • “Reducing Stress Through Deep Breathing” (Johns Hopkins)
  • “Visual Breathing Meditation” – breathe and follow ball moving up and down
  • “Relax and Breathe” – breathe as shapes change slowly
  • Many other videos on YouTube; search for “breathing exercises” or “deep breathing”

   Mindfulness

  •  YouTube search: “birds relaxation” “ocean waves” “mindfulness music” (anything!)
  •  “Ocean Breath Mindfulness with Bari Koral”
  • “Reduce Stress Through Progressive Muscle Relaxation”
  • “Reduce Stress Through Guided Imagery”
  • Nature videos used in “mindful moment”
    • Birds in woods
    • Waves in Hawaii
    • Relaxing music and photos
    • Birds and stream
    • Rainy forest
    • Wooden boat in ocean

• CliniciansKit.com — resources and tips for clinicians and students, managed by our lab
• Academy of Neurologic Communication Disorders and Sciences (ANCDS)
• American Speech-Language-Hearing Association (ASHA)
• Aphasia Access
• Aphasia Alliance
• Aphasia Community
• Aphasia Hope Foundation
• Aphasia Institute
• Australian Aphasia Rehabilitation Pathway
• National Aphasia Association (NAA)
• speechBITE